Thursday, February 20, 2014

The Worst Day 2.0

Way back a long time ago, the eye surgeon who performed Reid's tumor resection told us that if Reid ever had any pain in the area where he eye was removed, that could be an indication of tumor growing again.  Reid's tumor grew REALLY fast, and it was very aggressive.  Several doctors gathered us in a room back in 2012 to tell us that we had one shot to get this cancer.  They told us that the cancer had a 90% cure rate with the surgery, chemo and radiation.

Last Monday, February 10, Reid woke up and told me that his eye hurt.  He was referring to the left eye that was removed, but we still all called it his eye.  These words struck fear into my heart, but just as quickly as he said it, he went right on about his morning playing, getting ready for school and going to school for the day.  He was fine the rest of the day and evening.

Tuesday, February 11, he woke up with the same complaint.  I had jury duty that day, so Lance was in charge of getting him ready and to school.  He went to school and had a great day.  He never complained about it again.

Same thing on Wednesday, February 12 which also happened to be our anniversary.  I was on the jury again, and Lance was in charge of Reid.  When I finally go home at 5:00 on Wednesday night, I could tell that Lance was concerned.  Reid had fallen asleep on the couch and woken up complaining of pain again.  So, I emailed our St. Jude oncologist.  I told him that Reid had been recovering from a very bad cold, but that Lance and I were worried because of what the eye surgeon had told us about pain in that area. He emailed back telling us that he thought it could be sinus issues causing the pain.  Both Dr. Hatley (our oncologist) and Dr. Wilson (our eye surgeon) called Lance that night.  I felt very reassured about it all after that. Our St. Jude oncologist wanted me to take Reid to the pediatrician on Thursday just to get checked out.  Lo and behold, Reid had strep throat.  So, I was glad thinking that it somehow was all intertwined.

The weekend was long.  It seemed like the pain was getting worse, but then on Sunday, Reid had a great afternoon.  He played outside for a long time, and our friends even came over to hang out so that Reid could play with their boys. Monday started off bumpy again, but Reid seemed to perk up again mid afternoon.  We even went to Walmart.

Tuesday I took him back to the pediatrician because he seemed very lethargic and slept a lot of the day. She thought he was dehydrated, and she wanted us to bring him to the ER for fluids.  So we did.

We drove to Memphis yesterday afternoon.  My boy who never shuts up talking did not say 2 words for the whole 6 hour trip.  And he never smiled.  He is the biggest smiler.  So, our concern was growing as was Reid's pain.

Today his MRI started at about 10:00.  Last night Grizzles House was overbooked, so we spent the night in the Crown Plaza hotel which is just around the corner.  After his MRI, we moved our stuff back to the Grizzlies House.  We had a 1:45 appointment with Dr. Wilson, the eye surgeon.  When you are in the cancer world, every single thing means something.  One lady walked by and asked us to move to a bigger room, and I had a feeling something bad was coming.  I saw a lady bug this morning, and I still had a feeling something bad was coming.  I packed extra clothes for this trip.  I usually never pack extra clothes.God has given me this weird "sense" about things.  All week I keep getting glimpses of things that I thought were signs that something good was not coming.  The biggest sign was Reid's pain level.  It was/is very, very bad.  He is on pain killers of the narcotic variety for the pain.

So, they moved us to the bigger room (the same big room as 2012), and Dr. Wilson, Dr. Hatley and a few other people walked in.  That's when you know for sure it's not good news.  Reid's cancer is back.  There really is no other way to put it.  It came back in the same exact spot that it started.  I asked the doctors what about they 90%? They explained how they came up with it, and what it all boils down to is that Reid's cancer is very rare and very aggressive.  All that we know at this point is that he will be having surgery on Monday morning.  Our biggest concern now is to get him out of pain.  So, the surgery will alleviate the pain.  Beyond that, we don't know.  We have a meeting in the morning with the doctors again.  The first round of this fight used all of the big chemos.  Our oncologist is researching options.  

So many of you have asked me how I am able to put this posts on Facebook while we were going through this the first time.  It's because you are all family to us.  You all have prayed for us like crazy.  You all love our son.  And it is easier to write it out once so that everyone has the same information.

We covet your prayers.  We have no idea what the future holds.  We just know that we have to get Reid out of this excruciating pain that he has been in. As we get more information, I will let you know.

Thank you as always for loving us. And especially for loving Reid.

15 comments:

Susie from Bienvenue said...

I will cover all of you in prayer and please know that we are here for you.

Elisa's Quads said...

Prayers from my family to yours! I sincerely hope God gives you comfort and strength!

Celeste Goodwin said...

I keep up with your posts through Kemper. Please know that I am lifting each of you up in prayer. We have added Reid and your family to our church prayer list.

Sara Campbell said...

I am a friend of Ashley and Craig's. I am praying for you in Turkey.

Susan Hanly said...

Dear Amy,

I am so sorry to hear about Reid. You are in my thoughts and prayers. I will ask my Bible Study group to pray for Reid and your family.

Lots of prayers and thoughts for you and your precious family,

Susan Hanly

Sue said...

Prayers for Sweet Reid from Georgia. Our boys are faithful in remembering Reid in their prayers even though it's been years since they've seen him. Love y'all!

bridgette said...

I am praying through my tears right now. Sending all the love, light and healing inside me for Reid, and you and Lance and Wyatt.

Mike Johnson said...

We are praying fervently and believing for little Reid, and your whole family. And we are alerting our intercessors lists in the Shreveport-Bossier area churches as well. Not for a moment, does HE forsake us.

We love you guys,
Mike & Kelly Johnson


Stephen M. Young II said...

Kemper, my wife and I will pray for Reid today and daily. I will put him on our church prayer list. God bless.
Stephen M Young II (Heather's brother)

Theresa A said...

Prayers for Reid and your family for strength and healing.

Sharon said...

Amy,

I can't imagine what you and your sweet family are going through. I will be lifting you up in prayers every time God brings you to my mind and because of our history it will be often. We both know that He is the Great Physician and we both know how hard it is to believe during the tough times, but I will pray that He wraps His loving arms around you and gives you courage, strength, hope and peace.

Love,

Sharon Colomb

Golf girl said...
This comment has been removed by the author.
Pauline said...

I have added Reid 's name to my prayer list and will pray this prayer for Reid and Beau. God bless you!

Heavenly Father, I come before you with a solemn heart and in need of your intercession. I pray that the cancer that has come into Beau's and Reid's life soon fades into a quick remission. Please, Lord, I ask that you heal Beau and Reid, that you come into their life and take away illness, pain, or any fears associated with their cancer.

Lord, I beg you to spare Beau and Reid any suffering. Please, Lord, guide their families. Let them feel your amazing power and grace. Please bestow upon them the love, faith and guidance they will need to conquer these trials.

I praise you, Lord. I believe in your capacity for miracles, and ask for one on Beau's and Reid's behalf.

In Jesus' name, I pray. Amen.

Tracy said...

Praying!

Karen Lindsey said...

Ronnie's Life Ministry is praying for Reid and your entire family.

"Lord, help me to remember that nothing is going to happen to me today that together You and I can't handle." unknown

Don't know you guys, but sure do love you!!!!

PRAYING! Karen Lindsey