Tuesday, July 24, 2012

Life Changes In An Instant

Now is the time for the post I have been thinking of in my mind.  The post of how do I tell people such horribly bad news.  I can start by saying that this is a place I never dreamed I would be.  A place that made me cry on the inside for others.  I have always prayed for God to bless us with nothing but health.  I can't pretend to understand why this has happened.  A family that I used to go to church with years ago had a family member in Colorado during the shooting at the movie theater.  Thankfully she wasn't shot, but her friend Bonnie Kate was.  The mom put a quote on Facebook.  It says, "In every situation God is doing a thousand things that we cannot see and do not know."  I can't imagine why this path was chosen for us.  I would give anything in my power to change places with my baby.  If all he had to endure was what he endured last week at the hospital, that would be too much.  But to think of what lies ahead is suffocating.  I must trust that God has gone before us.  He knows the plan.  I must trust in His Sovereignty. It's the hardest thing I have ever done.

On Tuesday, June 26, I noticed Reid's eye was slightly swollen.  No one else in the world would have noticed.  The next day I was going to call his pediatrician's office, but decided to give him Benadryl and wait another day.  Reid and I went to our local library because Wyatt was at camp at Istrouma.  We actually ran into our pediatrician at the library.  She said it looked like an allergy and to keep giving him the Benadryl.  So I did that for the remainder of the week and weekend.  The next Monday I called the ped's office because it had not gotten any better.  We had an appointment for Tuesday morning, July 3.  I took him in, and I could tell she was slightly concerned.  She wanted us to go to an ophthalmologist.  We went to the ophthalmologist Tuesday afternoon.  She gave us some cream and told us to come back in 3 weeks.  Fast forward to Tuesday, July 17.  I took him back to the pediatrician because there had been no improvement, and it was actually getting worse.  She wanted an MRI done immediately.  We landed in OLOL at around 5 p.m. on Tuesday night.  The MRI was scheduled for first thing Wednesday morning.  A few hours later on Wednesday, we had a doctor in our room telling us that Reid had a 2 cm tumor over his eye.  Then an oncologist came in next telling us that she suspected Rhabdomyosarcoma.  A friend from high school has a son who was just diagnosed with this same thing in February.  How in the world is this happening?

A biopsy was scheduled for Thursday morning.  The surgeon told us that it would be a 30 minute procedure.  That turned into 1 1/2 hours.  It turns out that he was able to easily removed 50% of the tumor.  THANK YOU GOD!  He was not able to remove the whole thing because it would have been an extensive surgery.  The oncologist had already told us that he would not remove the whole thing.  After the surgery we were told we may know something by the next day.

Friday afternoon the oncologist came in to tell us that indeed it was Rhabdomyosarcoma.  She scheduled a CT scan and blood work for Saturday morning.  We had those tests done, and praise God they were both clear.  We were finally able to leave the hospital Saturday at around 1:00 p.m.

Today we found out that we will travel to St. Jude on Thursday, and we will have more appointments on Friday.  We are not exactly sure of all of the details.

A beacon of light in our stay in the hospital was our nurse Rikki.  She was an angel among us.  She contacted me yesterday via Facebook to say that she had been thinking of Reid and our family.  She asked me to keep in touch with her.  I was looking at her pictures because she said that she had a little girl that just turned 3.  On one of her little girl's pictures, there was the following Scripture.  "He performs wonders that cannot be fathomed, miracles that cannot be counted." Job 5:9  I am claiming these wonders and miracles for Reid.  He was never supposed to be born.  We were told we had a less than 1% chance of having another baby "naturally".  He has beaten the odds once.  We are waiting to see his second miracle!  God must have BIG, BIG things in store for him.

Please fall down on your face, and pray for my baby's healing.  Pray for miracles to unfold every single day.  Pray for peace and wisdom for Lance and for me.  Pray for comfort and peace for both Reid and Wyatt.  We are so thankful to our friends who have brought us food the last few nights, and for ALL of the gifts that Reid received in the hospital.  We are blessed BEYOND MEASURE with wonderful friends and family!

"But you, O LORD, are a shield about me, my glory, and the lifter of my head."  Psalm 3:3  Pray for a shield around Reid.  Pray that he will be shielded from Satan's arrows.  Pray for a straight path from here on out.  Pray for minimal pain for Reid.  Pray that he would be healed!


12 comments:

Susie from Bienvenue said...

Praying hard along side of you. Please let me know if there is anything we can help you with.

becky said...

Amy,
Please know that I am praying and believing God will heal Reid. I am so sorry. Even though we do not talk often, you were my first best friend and I love you. I remember going to church with you sometimes as little girls and I know the same God watches over Reid. I will not stop praying for you all.
Becky

laurietw said...

Amy, I am crying as I am reading this. I am praying for you all, Reid is a miracle, meant for great things. Much love to you all. Laurie (Thibodeaux) Williamson

Amanda said...

So sad to read this tonight. (I keep up with you in my reader) Wow, we are going to be praying for complete healing for Reid!! Praying peace for you as you head to Memphis.
Love
Amanda

Lisa said...

I just now stumbled across this post. We, too, will be praying complete healing for Reid and strength for you & all your family.......Lisa Sisson

Brad Seguin said...

Amy,
I hurt with you as a mother. Our prayers will be with you, and they will be abundant.
I know God has great things in store for you, your family, and Reid. I know it has to be hard, but God is faithful and He will send confirmation of it every day. I stand with you for all that you are believing for. Please keep us updated with your blog or facebook.
Karla

Brad Seguin said...

Love you!
Karla

Nicole Rodriguez said...

We go to church with Kesleigh and have been praying for Clayton and have loved watching God move in his healing. I will definitely be praying for you and Reid and your family. God has bigger plans and I am praying for Reid to have an amazing testimony when he's all grown up!

Gloria Dayeaux said...

Amy, I'm so sad to hear this news. My heart breaks for you and your family. I will be praying regularly for your precious son and all your family. May I add Reid to our church's prayer list? We have many faithful prayer warriors. Love and prayers from Sherry and Paul Zorzi

waiting said...

Mrs. Zorzi, thank you for your prayers! Please add Reid to your church's prayer list! The prayers of so many are lifting us up!

The Fabulous Foster Family said...

A friend sent me the link to your post (Wendy Hogan). I will be praying for Reid and you and your husband. I know we do not know each other, however, my family began a similar journey eleven months ago. Our 10 year old fainted and hit his head at school while talking to me. Worried he might have a concussion we went for a CT. The CT revealed a mass so an MRI was ordered immediately. He had a brain tumor measuring 4.6cm by 5cm and no real symptoms-the first miracle God blessed us with was him hitting his head because without symptoms his tumor was quickly becoming life threatening. Two and a half days later he underwent a four hour brain surgery to remove 99% of the tumor. His pathology report showed he had an ependymoma grade 2 and it would require further treatment. We found a doctor at St Jude who specializes in the treatment of this type of tumor. A month after we started on our journey we arrived at St Jude and met some of our medical army. The day started with a list of appointments but then one of our nurses unexpectedly knocked while another was taking vitals. She excitedly told us there was a misdiagnosis, Dillan did not have the type of brain tumor originally diagnosed. He has the best type of brain cancer you can have and his treatment plan is serial MRIs. Our second miracle, God changing his pathology results-the two tumors look nothing alike under a microscope. The journey we've been on was not what we had planned but I know He is not surprised and has continually blessed us in many ways. Dillan is doing good and is returning to school in a few weeks. Some days are harder than others and on the harder ones I picture Jesus carrying us through the sand. My heart goes out to you.

Alisha Harris said...

Hi there i am coming over from lucy krulls blog...prayinh and pdaying for a miracle!!! God is more than capable of healing him! Much love and prayers from south carolina!!